Thursday, October 15, 2015

1 month post-op visit!

WOW! I can't believe (a) I've actually made it to my 1 month post-op visit lol & (b) Has time stood still or did the time fly by?!?!

Things have been so crazy on my end I don't even know where to begin.. Let me just say, as I've said before... When I was forewarned about this recovery being one of the hardest things I'll go through in my life.. BOY were those people RIGHT!! I don't mean to say that to scare you guys in any way (especially if you're considering this surgery) but it's the honest truth & doesn't need to be sugar coated.. When my doctors told me it would be a year for recovery, I can see why now! The thing that has truly gotten me through just these first 5 weeks is my AMAZING support system; my awesome parents & grandparents, family that have been able to come around, some very amazing & blessed friends, as well & my awesome, amazing God!! I wouldn't be where I am today without the good Lord!! I can not begin to say thank you enough for all of the beautiful flowers I've received so far, as well as the sweet "Get Well" cards... Those make my day brighter everytime I see them & I enjoy every single one!!! With this recovery, I haven't ever experienced pain, the nausea & just a plain uncomfortable feeling as I have since surgery. My pain is still unfortunately still pretty bad, & my nausea isn't letting up much either. On top of my abdominal / back pain, I'm still having that obnoxious shoulder pain every couple days.. I was told today at my appt that it's still referred pain from my diaphragm being irritated & inflammed from surgery & who's to know how long that could take. My appetite hasn't returned & as I wrote before, could take up to 6-8 months before making its appearance again.. So until then we're going full force with the Boost Glucose Control & whatever tiny bit of protein I can stomach(3/4 grilled nuggets) followed by horrible pain from my new digestive system & extreme nausea.
I'm slowly working on getting comfortable in my own bed, yes it's taken me 5+weeks to STILL find that comfortable spot.. We're still working on it! LOL
I get exhausted after pretty much every activity I do right now, also a nice side effect of the surgery & my slowly having to regain all of my strength back. It's very hard for me & frustrating at times(this is the one thing I'm having a hard time grasping just because I'm use to going whenever & now I totally can't!) I have to nap after I eat, shower, go for a mini walk(to the stop sign & back), have visitors.. Doing anything takes a lot out of you..
It's SO wonderful having visitors though.. That always brightens my afternoon or evening up so if you're contemplating wanting to come by, please do.. Just shoot mom or I a text & well be looking out for u! :-)
I THINK.. Yes, think, i have officially gotten rid of every piece of tape residue that was residing on my body.. Finally!! You guys don't realize just HOW MUCH tape residue you acquire from being in the ICU for 5.5 days & the floor for 1.5days..its insane & EVERYWHERE! hah

My 1st monthly post-op doctors appointment went fairly well! The nutritionist, PA & my surgeon all said I looked really good & were happy to see how I looked. The nutritionist isn't worried with how my appetite isn't there, & she reiterated to me the timing it could take before it's epic return.. Like I'm. Constantly. Reminded... It's a Slow Steady Recovery... A year before you'll be back to normal.. I was told that again today.. No one wants to hear that.. Everyone was pleased with my blood sugar levels! Woohoo GO ME! I'm working hard on keeping those levels stable right now... Remember everyone.. We still need prayers & more prayers for those growing, thriving islet cells that were transplanted into my liver!! They need to keep growing & thriving so they'll work properly!! No dying for my cells!!!
My surgeon's plan for the next month is to hopefully get my pain & nausea a bit more under control. We've changed & upped my pain meds just a bit, as well as put me on a scheduled dose for my nausea meds.. The more they're in my system, the better controlled it'll be.. Similar to the pain-or any other type of medicine for that matter. I also had a little mini procedure during my visit today; I've had some sutures sticking out of my neck ever since a RN took out my central line, but left some souvenirs lol.. My surgeon got some pick-ups & started, ever so delicately(NO joke.. I couldn't even feel her moving & one suture was WAY embedded in my skin) started dissecting it out. There's still a little suture left but nothing like before! Go Dr Morgan! :)

I head back down to Charleston next month for another monthly visit, my appointment with the endocrinologist, as well as a clinical trial study work-up appointment.. If this appointment didn't exhaust me, next months agenda definitely will!

Thank you guys again SO much for all of your love, support & encouragement!! I wouldn't be where I am at today without everyone & I truly appreciate, love & am so grateful for every single one of you guys!!
                     SO MUCH LOVE 3
My scar the day after surgery, a few days after & recently now that the staples are out

2 comments:

  1. I just commented but it didn't show up. Here goes again and sorry if a duplicate...I am so inspired by you. Hang in there kid. You are going to live a wonderful, blessed life and this surgery will be well worth it. I just got the official CP diagnosis from an EUS. I only had SOD issues prior so I am scared and a bit upset. Reading your blog gives me hope and puts a smile on my face. So grateful you decided to write this blog. I look forward to reading about your progress.

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    1. I am SO sorry for your CP diagnosis!! :( I had the SOD problems before as well but having the TP/AIT removes your bile duct so that takes care of that issue! I know the struggles you're going through, physically and mentally & if you need any advice I'm here. I pray whatever course of treatment you decide to take works well for u & ur CP & SOD combined so, god forbid you don't get this far down the line into the game... Fight & fight hard!!

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