Tuesday, March 31, 2015

Insomnia

Well my pancreas seems to be acting a fool today & in rare form these days. I've had this lovely streak of pain that isn't going away, which in turn is cutting in on my sleep schedule, which is turning me into an insomniac... NOT a good combination!
I'm missing my beloved sleep very much, which seems so mundane & simple but you don't think about those things until there taken away from you..
I know this is only temporary & this too shall pass, although at the current time of the struggle it's always difficult & that's all you seem to think about. Those words are always in my head..
.This too shall pass!!.
I'm really enjoying the blogging at this point(although it's early on I still love the therapy of writing my thoughts & feelings down!)
I may post more later if I'm still awake with more on my mind :) For now, goodnight loves
XO -T

About Me!

I am a 28 year old who loves life! I love being around my family & friends, making new relationships with people, connections with people of all ages, hearing their stories of life, anything like that interests me! 

I currently am battling a horrific chronic illness of Chronic Pancreatitis (CP), as well as Chronic Anemia, Sphincter of Oddi dysfuntion & (in this case more minor) chronic migraines.  I am in the process of getting ready to undergo a Total Pancreatectomy with Auto Islet Cell Transplantation (can you say mouthful).  This surgery means total removal of my pancreas(TP), & the auto islet cell transplant(AIT) means harvesting the islet cells (insulin producing cells) & transplanting them into my liver.(come again?) I want to blog my entire journey from beginning to end of surgery & life after surgery(which I'm a little late in the game since I've been battling this disease for a good 4years now but now is better than never)
I'm a compassionate, caring, sensitive, hard working, determined, very knowledgeable young woman & look forward to going through this new journey & expressing it all with you. :)


I also hope that my experiences & journey will help anyone else who is battling any of the illnesses I am going through as well.  If it helps anyone at all, just a little bit, I will have a smile on my face.
When I'm not stuck in the hospital or sick at home hooked to an IV pump, I love sweating & the way exercise makes me feel.  I'm a big home workout girl, & love anything that has to do with fitness.  The smell of new shoes always brings a smile to my face (it must be in my blood!) & going through racks of clothes is always good therapy to me..although my purse strings don't like it too me.  The medical field is my passion as well as my career, although spending so much time around it health wise I'm experiencing it from the other side a bit more than my taste of liking... STAY TUNED for my epic returned!!!  :)

Blog Virginity!!

I said it!! This is my official post… It won’t that substantial just because it’s pretty late, and I took too long trying to figure out just how to work this dang site!! HA!  I have started this blog as somewhat of a therapy for me, but also for some documentation as well for the upcoming months, years & so forth with my health condition.  As many of you already know I have a pretty chronic health condition, that unfortunately isn’t going away… CP – otherwise known as Chronic Pancreatitis.. and with that I’ve got a few other issues.. chronic anemia, because of the chronic inflammation that won’t go away within my body, Sphincter of Oddi dysfunction, a complication from having my gallbladder removed & chronic migraines (not a complication from my CP but a complication all in itself) lol.  Along with all of these issues, I have a LONG list of medications I have to take daily, along with a nice long list of meds I’m allergic too.. along with developing a lovely allergy to tegaderm this year with my PICC line I’ve had inserted.. something no one wants to develop.. (for those who don’t know what tegaderm is, it’s a dressing similar to a band-aid that is clear & pretty large to cover a sterile dressing or IV) Well it looks like I’ve rambled enough tonight.. I’ll update more tomorrow & go into more details about my condition, surgery etc tomorrow. :)
Goodnight for now. XO
Tiff